The past 14 months have been pretty good health-wise for our family, including Evie. We have been blessed with almost no sickness except for a few colds and runny noses. No ear infections, no hospital visits, no vomiting, no fevers and thank god no broken bones. With that said, we have a lot to be happy about when it comes to the health of our little girl. However, when she was born, she had 3 holes in her heart. It was a very scary thing for new parents to understand, nevertheless finding out your child has Down Syndrome. I just wanted more than anything for her to be healthy, and I still feel that way today. Well... we went to the Cardiologist last week and got some not too great news. We knew when she was about 7 months old that two holes had closed and she has one hole left. The cardiologist seemed very positive about Evie's condition and her hope for a healthy life in the future. Honestly I have barely even thought about that remaining hole over the last 7 months- I was so positive that it would close up on it's own. She is such a strong and healthy little girl. Well, unfortunately the hole is still there. Her heart is having to work harder to pump blood and her heart is becoming slightly enlarged on one side. With that said, it looks like the very thing we were confident would NEVER have to happen, may just have to happen. Surgery.
I am doing my very best to be optimistic and think of only the best case scenario, but even that makes me sick to my stomach. If she is a good candidate for a device to close the hole, they will deliver it via catheter through her leg and into her heart. If that doesn't work, its open heart surgery. Even thinking about my little girl going into surgery and under the knife is the hardest thing to imaginge and I dont know how I am going to get through it.
We have 6 more months to wait before we know anything. We then will go back and the cardiologist will take another look. At that time they will decide what type of surgery she will have and then we have to think about when. She is so small, so helpless and my little angel.
Please God- bless us and make a miracle happen.
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Hi Stef - thanks for being so open and honest with us. I wanted to leave you my prayer for you guys and little Evie. We will have our friends and family be praying for her as well. Please keep us updated on her progress.
Dear Lord, I want to lift up little Evie to you. Lord, you know how precious she is and how much joy she brings to everyone who meets her. Lord, we are asking that you heal her little body and give Stef and Isa strength during this difficult time. Please provide them with the peace that passes all understandings that you promise in Phil. 4:7. Please help them to know that they have friends that care about them and are praying for them. Lord, I praise you in advance for the amazing things that you are going to do in this situation. Amen.
Isa and Stephanie,
You two are so strong, and we admire you so much. You knew how hard this would be going into it, and you accepted the challenge. More than that, you gave your love unreservedly to your little girl. You are the best parents little Evie could have. Annie is Buddhist, so we are praying to Buddha for you and your daughter. Love from Angola... Annie and Jeff
Oh no, hoping it can be done laproscopically (or however you spell that). Keep us posted.
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